[1] Agronin ME. Clinical practice guidelines for Alzheimer's disease and other types of dementia (3rd Edition)[M]. Wang G, Ren RJ, translate, Shanghai:Shanghai Jiao Tong University Press, 2015:46.[Agronin ME. 阿尔茨海默病及其他类型痴呆临床实践指南(第3版)[M]. 王刚, 任汝静, 译. 上海:上海交通大学出版社, 2015:46.]
[2] Cui L, Hou NN, Wu HM, Zuo X, Lian YZ, Zhang CN, Wang ZF, Zhang X, Zhu JH. Prevalence of Alzheimer's disease and Parkinson's disease in China:an updated systematical analysis[J]. Front Aging Neurosci, 2020, 12:603854.
[3] Jia J, Wei C, Chen S, Li F, Tang Y, Qin W, Zhao L, Jin H, Xu H, Wang F, Zhou A, Zuo X, Wu L, Han Y, Han Y, Huang L, Wang Q, Li D, Chu C, Shi L, Gong M, Du Y, Zhang J, Zhang J, Zhou C, Lv J, Lv Y, Xie H, Ji Y, Li F, Yu E, Luo B, Wang Y, Yang S, Qu Q, Guo Q, Liang F, Zhang J, Tan L, Shen L, Zhang K, Zhang J, Peng D, Tang M, Lv P, Fang B, Chu L, Jia L, Gauthier S. The cost of Alzheimer's disease in China and re-estimation of costs worldwide[J]. Alzheimers Dement, 2018, 14:483-491.
[4] Lee L, Weston WW. Disclosing a diagnosis of dementia:helping learners to break bad news[J]. Can Fam Physician, 2011, 57:851-852.
[5] Zou Y, Song N, Hu YB, Gao Y, Zhang YQ, Zhao QH, Guo QH, Li X, Li GJ, Xiao SF, Chen SD, Ren RJ, Wang G. Caregivers' attitude toward disclosure of Alzheimer's disease diagnosis in Urban China[J]. Int Psychogeriatr, 2017, 29:1849-1855.
[6] Schweda M, Kögel A, Bartels C, Wiltfang J, Schneider A, Schicktanz S. Prediction and early detection of Alzheimer's dementia:professional disclosure practices and ethical attitudes[J]. J Alzheimers Dis, 2018, 62:145-155.
[7] Wang G. Handbook of rating scale for neuropsychological assessment of dementia and associated cognitive disorders[M]. Beijing:Science Press, 2020:17-19.[王刚. 痴呆及认知障碍神经心理测评量表手册[M]. 北京:科学出版社, 2020:17-19.]
[8] Silva MVF, Loures CMG, Alves LCV, de Souza LC, Borges KBG, Carvalho MDG. Alzheimer's disease:risk factors and potentially protective measures[J]. J Biomed Sci, 2019, 26:33.
[9] Zhu F, Deng MJ. On advance medical directive system[J]. Yi Xue Yu Fa Xue, 2019, 11:9-14.[朱凡, 邓孟姣. 论预先医疗指示制度[J]. 医学与法学, 2019, 11:9-14.]
[10] Sun YL. On the fundamental legal issues of advance health care directives[J]. Huainan Shi Fan Xue Yuan Xue Bao, 2019, 21:7-11.[孙也龙. 论预先医疗指示的若干法律问题[J]. 淮南师范学院学报, 2019, 21:7-11.]
[11] Cao K, Jiang BS. Conflicts and solutions between patient autonomy and doctor discretion under the advance medical directive[J]. Zhongguo Yi Xue Lun Li Xue, 2021, 34:143-147.[曹凯, 姜柏生. 预先医疗指示视角下患者自主权与医师自由裁量权的冲突与解决[J]. 中国医学伦理学, 2021, 34:143-147.]
[12] NIH National Institute on Aging. Advance care planning:health care directives[EB/OL].(2018-01-15)[2021-02-15]. https://www.nia.nih.gov/health/advance-care-planning-health-care-directives.
[13] Feng QR, Jin L, Shi BX. Knowledge and attitudes regarding advance directives and associated factors among community-dwelling older adults and families[J]. Zhongguo Quan Ke Yi Xue, 2020, 23:3941-3948.[冯清蕊, 金蕾, 史宝欣. 社区老年居民及家属预先指示知识和态度及其影响因素研究[J]. 中国全科医学, 2020, 23:3941-3948.]
[14] Sun S. Knowledge of advance directives in patients to receive cardiopulmonary bypass cardiac surgery under extracorporeal circulation[J]. Hu Li Xue Za Zhi, 2019, 34:34-37.[孙思. 体外循环心脏手术患者术前对预先指示认知情况调查[J]. 护理学杂志, 2019, 34:34-37.]
[15] Muni S, Engelberg RA, Treece PD, Dotolo D, Curtis JR. The influence of race/ethnicity and socioeconomic status on end-of-life care in the ICU[J]. Chest, 2011, 139:1025-1033.
[16] Mitchell SL, Teno JM, Kiely DK, Shaffer ML, Jones RN, Prigerson HG, Volicer L, Givens JL, Hamel MB. The clinical course of advanced dementia[J]. N Engl J Med, 2009, 361:1529-1538.
[17] Zhou M, Wang H, Zeng X, Yin P, Zhu J, Chen W, Li X, Wang L, Wang L, Liu Y, Liu J, Zhang M, Qi J, Yu S, Afshin A, Gakidou E, Glenn S, Krish VS, Miller-Petrie MK, Mountjoy-Venning WC, Mullany EC, Redford SB, Liu H, Naghavi M, Hay SI, Wang L, Murray CJL, Liang X. Mortality, morbidity, and risk factors in China and its provinces, 1990-2017:a systematic analysis for the Global Burden of Disease Study 2017[J]. Lancet, 2019, 394:1145-1158.
[18] Li J. Research progress on palliative care for senile dementia patients[J]. Zhi Hui Jian Kang, 2020, 6:61-62.[李洁. 老年痴呆患者安宁疗护的研究进展[J]. 智慧健康, 2020, 6:61-62.]
[19] World Health Organization. WHO definition of palliative care/WHO definition of palliative care for children[EB/OL].(2018-12-03)[2021-02-15]. http://www.who.int/cancer/palliative/definition/en/.
[20] World Health Assembly. Strengthening of palliative care as a component of comprehensive care throughout the life course[EB/OL]. (2014-05-24)[2021-02-15]. http://apps.who.int/iris/handle/10665/158962
[21] Ning XH. The development of palliative care in China[J]. Zhongguo Yi Xue Ke Xue Yuan Xue Bao, 2019, 41:723-725.[宁晓红. 中国缓和医疗的发展和思考[J]. 中国医学科学院学报, 2019, 41:723-725.]
[22] Jiang S, Li Z, Lu GJ, Zhou N. Conceptual distinctions, key elements and practical applications of hospice care and palliative care[J]. Yi Xue Yu Zhe Xue, 2019, 40:37-42.[姜姗,李忠, 路桂军, 周宁. 安宁疗护与缓和医疗:相关概念辨析、关键要素及实践应用[J]. 医学与哲学, 2019, 40:37-42.]
[23] Stewart JT, Schultz SK. Palliative care for dementia[J]. Psychiatr Clin North Am, 2018, 41:141-151.
[24] Ayman AR, Khoury T, Cohen J, Chen S, Yaari S, Daher S, Benson AA, Mizrahi M. PEG insertion in patients with dementia does not improve nutritional status and has worse outcomes as compared with PEG insertion for other indications[J]. J Clin Gastroenterol, 2017, 51:417-420.
[25] Mitchell SL, Mor V, Gozalo PL, Servadio JL, Teno JM. Tube Feeding in US Nursing Home Residents with advanced dementia, 2000-2014[J]. JAMA, 2016, 316:769-770.
[26] David CD. Do-not-resuscitate order:MedlinePlus medical encyclopedia[EB/OL].(2019-05-29)[2021-02-15]. http://medlineplus.gov/ency/patientins tructions/000473.htm.
[27] Richardson DK, Zive D, Daya M, Newgard CD. The impact of early do not resuscitate (DNR) orders on patient care and outcomes following resuscitation from out of hospital cardiac arrest[J]. Resuscitation, 2013, 84:483-487.
[28] Dubinsky RM, Stein AC, Lyons K. Practice parameter:risk of driving and Alzheimer's disease (an evidence-based review):report of the quality standards subcommittee of the American Academy of Neurology[J]. Neurology, 2000, 54:2205-2211.
[29] Regulations on application and use of motor vehicle driving license[J]. An Quan Yu Jian Kang (Xia Ban Yue), 2007:32-35.[机动车驾驶证申领和使用规定[J]. 安全与健康(下半月), 2007:32-35.]
[30] Ott BR, Festa EK, Amick MM, Grace J, Davis JD, Heindel WC. Computerized maze navigation and on-road performance by drivers with dementia[J]. J Geriatr Psychiatry Neurol, 2008, 21:18-25.
[31] Man-Son-Hing M, Marshall SC, Molnar FJ, Wilson KG. Systematic review of driving risk and the efficacy of compensatory strategies in persons with dementia[J]. J Am Geriatr Soc, 2007, 55:878-884.
[32] Fuermaier ABM, Piersma D, de Waard D, Davidse RJ, de Groot J, Doumen MJA, Bredewoud RA, Claesen R, Lemstra AW, Scheltens P, Vermeeren A, Ponds R, Verhey F, De Deyn PP, Brouwer WH, Tucha O. Driving difficulties among patients with Alzheimer's disease and other neurodegenerative disorders[J]. J Alzheimers Dis, 2019, 69:1019-1030.
[33] Haussmann R, Wagner T, Müller D, Bauer M, Laux G, Donix M. Assessment of ability to drive in patients with MCI and dementia[J]. Nervenarzt, 2017, 88:247-253.
[34] Piersma D, Fuermaier AB, de Waard D, Davidse RJ, de Groot J, Doumen MJ, Bredewoud RA, Claesen R, Lemstra AW, Vermeeren A, Ponds R, Verhey F, Brouwer WH, Tucha O. Prediction of fitness to drive in patients with Alzheimer's dementia[J]. PLoS One, 2016, 11:e0149566.
[35] Piersma D, Fuermaier ABM, De Waard D, Davidse RJ, De Groot J, Doumen MJA, Bredewoud RA, Claesen R, Lemstra AW, Scheltens P, Vermeeren A, Ponds R, Verhey F, De Deyn PP, Brouwer WH, Tucha O. Assessing fitness to drive in patients with different types of dementia[J]. Alzheimer Dis Assoc Disord, 2018, 32:70-75.
[36] Bennett JM, Chekaluk E, Batchelor J. Cognitive tests and determining fitness to drive in dementia:a systematic review[J]. J Am Geriatr Soc, 2016, 64:1904-1917.